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The Power of Patient Data: New Opportunities for Lifesciences
Over 2,100 registrants signed up to learn how patient data is disrupting life sciences product development and commercialization. The recording of THE POWER OF PATIENT DATA: New Opportunities for Life Sciences from Rare Patient Voice and Clinakos is is now available on LinkedIn at https://lnkd.in/dc_D7fZ6. This event is a must for pharma, biotech, medical affairs, MRX, […]
Clinakos CEO to present at CDISC 2021 US Interchange on October 20, 2021
Clinakos CEO Inder Jaggi has been invited to present at CDISC’s 2021 US Interchange conference. The title of his talk is “Impact of HHS Final Data Blocking Rule on RWD/RWE Generation.” This talk describes the increasingly important role of RWD and RWE in biopharmaceutical research, drug approvals and label extensions. The FDA now has published […]
Webinar Replay: Combining Patient Data with the Patient Voice: A Novel Approach
https://player.vimeo.com/video/605776707?dnt=1&app_id=122963&h=c95704dd1dClinakos and Rare Patient Voice’s webinar was one of Pharmavoice’s most attended webinars of the year. This webinar covered recent technological and regulatory changes that have enabled a novel approach to combing real world data with market research. Combining the patient’s actual medical data with their experience and opinions provides unique insights for pharma and […]
Webinar – Combining Patient Data with the Patient Voice: A Novel Approach
Companies spend billions of dollars on both procuring healthcare data and conducting market research with limited results. This problem is especially acute in oncology and rare diseases where patients are hard to find and their data is often lacking in syndicated or aggregated data sets. Recent technological and regulatory changes have enabled a novel approach […]
ResearchLive covers Clinakos and Rare Patient Voice partnership on patient data
Patient recruitment company Rare Patient Voice has entered a partnership with data business Clinakos to combine patient survey insights with medical profile and behavioural data.
Rare Patient Voice and Clinakos Launch a Patient Level Data and Insights Solution across 563 Rare Disease and Oncology Indications
PALO ALTO, CA and TOWSON, MD, April 20, 2021 Rare Patient Voice (RPV), the leader in patient-focused recruiting, and Clinakos, the market leader in linked patient level data and insights, are pleased to announce an industry-first collaboration designed to combine the patient voice with actual patient data. This innovative partnership brings together Rare Patient Voice’s […]
Patient Journeys and Insights for Oncology and Rare Diseases
The Challenge Creating robust patient journeys for rare disease patients is challenging. Rare disease patients are very difficult to find. Their data is often lacking in syndicated or aggregated data sets due to the rarity of the conditions. Even when the patients can be found, it is difficult to ensure that their relevant medical data […]
Americans Want Federal Government to Make Sharing Electronic Health Data Easier
74% of patients support govt standards for matching of patient data across the healthcare system. Clinakos is already supporting thousands of patients with their data. Download PDF
Oncologists Respond to Care Challenges Presented by COVID-19
Oncologists Respond to Care Challenges Presented by COVID-19 ASCO survey finds 60% of cancer clinical research programs halted screening and/or enrollment of clinical trials due to Covid-19 difficulties. Further, ASCO also finds Oncology practices reporting grave impact on their patients and their families. This is expected to have a wide ranging impact on how oncology […]
