News Events & Articles

Noteworthy update for the world of rare disease innovation July 15, 2025 🚀 Noteworthy update for the world of rare disease innovation! The FDA’s head of CBER, Vinay Prasad, stated at the recent National Organization for Rare Disorders conference that the agency is committed to making rare disease drugs available at the very first sign […]

Batten Disease Awareness Day June 9, 2025 Batten Disease Awareness Day: Shining a Light, Sharing a Story 🌟🧡 June 9 is not just another date on the calendar—it’s International Batten Disease Awareness Day, a day when families, advocates, and organizations around the globe unite to shine a light on one of the world’s rarest and

Turning Cancer Data Chaos into Actionable Insights July 15, 2025 🚨 Data Silos in Cancer Care undermine advances in research and treatment. Nearly 90% of healthcare data exists in unstructured formats. In oncology, crucial patient data is scattered across hospitals, labs, EHRs, and even wearables-making it tough for researchers and clinicians to get the full

Uterine Cancer Awareness Month July 15, 2025 🎗️ June is Uterine Cancer Awareness Month. These cancers include endometrial cancers and uterine sarcomas. Did you know that endometrial cancer is the most common gynecologic cancer in the U.S., projected to affect over 69,000 women and cause nearly 14,000 deaths in 2025, according to the American Cancer

ASCO 2025 Takeaways July 15, 2025 ASCO 2025: Where Oncology’s Brightest Minds Meet—and Clinakos Inc. Listens Closely We’re back from the American Society of Clinical Oncology (ASCO) Annual Meeting, energized and inspired by the innovations shaping the future of cancer care. It was especially good seeing our partner Wes Michael of Rare Patient Voice—collaborations like

National Cancer Survivors Day June 2, 2025 Yesterday, the world celebrated National Cancer Survivors Day—but at Clinakos Inc., we believe every day is a chance to honor survivors’ strength, stories, and hope. 💪🎗️ Survivors aren’t just statistics—they’re the reason we innovate. Take Kris Carr, for example. Diagnosed in 2003 with a rare and incurable Stage

Rare Diseases: No Longer in the Shadows May 30, 2025 🚦 Rare Diseases: No Longer in the Shadows! This week, the world hit a milestone at the Global Health Summit in Geneva: rare diseases where nearly 200 countries adopted a resolution to prioritize rare disease care 🌐💡 At Clinakos Inc., we see this as more

Exciting news for the rare cancer research community! July 14, 2025 Exciting news for the rare cancer research community! 🎗️ The U.S. Department of Defense’s Rare Cancers Research Program (RCRP) is rolling out significant new funding opportunities in 2025 to accelerate research and innovation in rare cancers. Backed by the Congressionally Directed Medical Research Programs

Our Partner, Axtria’s ISPOR 2025 Decoded May 28, 2025 We’re still feeling the ISPOR 2025 excitement—and our friends at Axtria – Ingenious Insights captured it perfectly in their latest recap! 🚀 Their article, “ISPOR 2025 Decoded: Axtria’s Must-See Insights and Emerging Themes”, shines a spotlight on the big ideas, bold innovations, and, yes, the brilliant

We’re Exhibiting at 2025 ASCO Annual Meeting July 14, 2025 🎗️ The countdown is on—just 3 days until ASCO25! Clinakos is excited to be part of this year’s pivotal gathering focused on “Driving Knowledge to Action: Building a Better Future.” This theme is woven throughout the ASCO 2025 agenda, emphasizing turning scientific discoveries and data