Cancer Immunotherapy Month

Clinakos, rare disease, integrated patient data, medically smart AI, Oncology

June is Cancer immunotherapy month, and Clinakos Inc. nothing excites us more than getting to know about new breakthrough therapies and innovations in Oncology and Precision Medicine! ✨ In a recent study (April 2025), researchers have unveiled EchoBack-CAR T-cells—next-gen, ultrasound-controlled immune cells with game-changing benefits: 5x longer attack on tumor cells vs. standard CAR T-cells […]

Myasthenia Gravis Awareness Month

Clinakos, rare disease, integrated patient data, medically smart AI, Myasthenia Gravis

June is Myasthenia Gravis Awareness Month! Did you know that patients with seronegative myasthenia gravis (snMG) face unique and often greater challenges than those with other forms of MG? An April 2025 research study shows: • snMG patients experience longer diagnostic delays and earlier symptom onset • Only 15.9% achieve complete remission (compared to 27.8% […]

RWE’s Growing Role in Rare Disease Innovation

Clinakos, rare disease, integrated patient data, medically smart AI

Spotlight on Progress: We’re thrilled to see how real-world evidence (RWE) is transforming the landscape of drug and biologic approvals in rare diseases. According to a recent article from the American Society for Clinical Pharmacology & Therapeutics (ASCPT), between fiscal years 2020 and 2022, the US FDA approved five drugs and biologics where RWE played […]

Alzheimer’s & Brain Awareness Month

Alzheimer, Clinakos, rare disease, integrated patient data, medically smart AI

Alzheimer’s & Brain Awareness Month: Jeff’s Story—Redefining What’s Possible At Clinakos Inc., we know that behind every diagnosis is a person with dreams, grit, and a story worth telling. This Alzheimer’s & Brain Awareness Month, we’re honoring those stories—starting with Jeff Borghoff’s. When Life Hits Pause—And Play Imagine being a tech-savvy dad in your early […]

Noteworthy update for the world of rare disease innovation

Clinakos, rare disease, integrated patient data, medically smart AI, FDA

Noteworthy update for the world of rare disease innovation! The FDA’s head of CBER, Vinay Prasad, stated at the recent National Organization for Rare Disorders conference that the agency is committed to making rare disease drugs available at the very first sign of promise. Here’s what you need to know: Faster Access: The FDA is […]

Batten Disease Awareness Day

Clinakos, rare disease, integrated patient data, medically smart AI, Cancer, Oncology, Batten Disease

Batten Disease Awareness Day: Shining a Light, Sharing a Story June 9 is not just another date on the calendar—it’s International Batten Disease Awareness Day, a day when families, advocates, and organizations around the globe unite to shine a light on one of the world’s rarest and most devastating childhood diseases. At Clinakos Inc., we […]

Turning Cancer Data Chaos into Actionable Insights

Clinakos, rare disease, integrated patient data, medically smart AI, Cancer, oncology

Data Silos in Cancer Care undermine advances in research and treatment. Nearly 90% of healthcare data exists in unstructured formats. In oncology, crucial patient data is scattered across hospitals, labs, EHRs, and even wearables-making it tough for researchers and clinicians to get the full picture. This fragmentation leads to: Delayed diagnoses & treatment decisions Missed […]

Uterine Cancer Awareness Month

Clinakos, rare disease, integrated patient data, medically smart AI, Cancer, uterine cancer

June is Uterine Cancer Awareness Month. These cancers include endometrial cancers and uterine sarcomas. Did you know that endometrial cancer is the most common gynecologic cancer in the U.S., projected to affect over 69,000 women and cause nearly 14,000 deaths in 2025, according to the American Cancer Society In March 2025, researchers at the Icahn […]

ASCO 2025 Takeaways

Clinakos, rare disease, integrated patient data, medically smart AI, oncology, ASCO 2025

ASCO 2025: Where Oncology’s Brightest Minds Meet—and Clinakos Inc. Listens Closely We’re back from the American Society of Clinical Oncology (ASCO) Annual Meeting, energized and inspired by the innovations shaping the future of cancer care. It was especially good seeing our partner Wes Michael of Rare Patient Voice—collaborations like these are vital as we work […]

National Cancer Survivors Day

Clinakos, rare disease, integrated patient data, medically smart AI, Cancer, Oncology

Yesterday, the world celebrated National Cancer Survivors Day—but at Clinakos Inc., we believe every day is a chance to honor survivors’ strength, stories, and hope. Survivors aren’t just statistics—they’re the reason we innovate. Take Kris Carr, for example. Diagnosed in 2003 with a rare and incurable Stage IV cancer called epithelioid hemangioendothelioma, Kris transformed her […]