As we celebrate World Hemophilia Day this April 17th, we would like to spotlight Shellye Horowitz’s inspiring story. Diagnosed with hemophilia at just 10 years old, she has faced significant challenges, from joint bleeds to complications due to delayed treatment.

Despite these obstacles, Shellye empowered herself by learning to self-infuse clotting factors and has become a leading voice for raising awareness about hemophilia in women and girls, a group often overlooked in healthcare. Her story highlights the urgent need for equitable access to diagnosis and care for all individuals with bleeding disorders.

At Clinakos Inc., we leverage innovative tools like Integrated Patient Data™ and Medically Smart AI™ to uncover hidden insights and improve care pathways for rare conditions like hemophilia. By connecting data and driving actionable intelligence, we help healthcare providers deliver better outcomes for underserved populations.

On this Hemophilia Awareness Day, we honor advocates like Shellye who inspire change and remind us of the importance of equitable care. Together, we can build a future where no one is left behind in their healthcare journey.

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