🧠Ahead of International Ataxia Awareness Day on September 25, Clinakos is recognizing the complexity of Friedreich ataxia and the need for a more complete view of the FA care journey.
Friedreich ataxia (FA) is a rare, progressive inherited disease that affects more than just balance and coordination. It can involve neurological, cardiac, metabolic, musculoskeletal, sensory, and emotional health, making longitudinal, whole-person evidence especially important.
At Clinakos, our Friedreich ataxia Patient Data Repository brings together longitudinal, routine-care data to help life-sciences teams better understand disease burden, care pathways, and unmet needs across the patient journey.
We are committed to advancing understanding in the FA community by making complex real-world data more decision-ready, supporting patient finding, evidence generation, and informed decisions across development, medical affairs, commercialization, and access.
Want to learn more about how real-world data is accelerating FRDA research? Visit our website or reach out to our team today.
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