Clinakos

Wilson’s Disease Awareness Day

Clinakos, Integrated Patient Data, Medically Smart AI, Rare diseases, wilson's disease

As  December 6 approaches, we recognize Wilson’s Disease Awareness Day, a time to shed light on a rare condition that affects fewer than 1 in 30,000 people. Tarsha’s story, shared on the National Organization for Rare Disorders, is that the journey to a diagnosis was long and painful. Growing up, she endured symptoms no one could explain, living much of her life unaware that her body couldn’t properly eliminate copper. Years of misdiagnoses and frustration finally gave way to answers, but not without emotional and physical scars.

Wilson disease is a rare genetic disorder that requires timely diagnosis and intervention to prevent devastating outcomes. Patients like Tarsha remind us how critical it is to bridge the gaps in data and care.

At Clinakos Inc., we harness the power of Integrated Patient Data ™ and Medically Smart AI™ to connect data points across patient journeys, enabling earlier insights, an understanding of disease, and improved diagnosis. We help life science researchers and pharmaceutical companies bring life-saving rare disease drugs to patients.

To learn more follow us at Clinakos Inc. or visit us at https://lnkd.in/gETCmT8h

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