As Rare Disease Month approaches this February, we turn our attention to the extraordinary stories of individuals navigating life with conditions that often defy quick diagnosis and straightforward treatment. Their journeys are a testament to resilience and the urgent need for innovation.

Recently, I came across with the story of Faye Louise, a 40-year-old from Horsham, West Sussex. Diagnosed with Pseudomyxoma peritonei , a rare cancer originating in the appendix, Faye underwent an 11-hour surgery in 2023 to remove eight organs. Initially fearing the worst, she is now cancer-free and has returned to her job, dedicating herself to raising awareness about rare conditions and the importance of early detection.

At Clinakos Inc., we are committed to addressing these challenges. By leveraging Medically Smart AI™, we collaborate with pharmaceutical partners to uncover actionable insights from real-world data—transforming patient experiences and advancing treatment options.

💡 Let’s come together to amplify these stories and turn awareness into action. Rare disease patients deserve nothing less.

💬 Have you or someone you know been impacted by a rare disease? We’d love to hear your story.