Integrated Patient Data™

Clinakos provides the most complete, comprehensive, high-fidelity patient-level data for rare diseases and oncology. Our data includes medical records, unstructured data, quantitative and qualitative data, and PROs. Our Medically Smart AI™ can curate structured and unstructured data to provide our customers with complete Patient360 views.

Interviews

SDoH

EMR

PROs

Wearables

Labs

Pharmacy

Comprehensive Patient360 Data Integration

What Makes Our Data Unique

Our data sets are uniquely positioned to provide the insights you need for rare disease and oncology research.

High Fidelity

Deeply curated patient data with clinical context and longitudinal tracking

Comprehensive

Structured and unstructured data including EMR, claims, and patient-reported outcomes

AI-Enhanced

Medically Smart AI™ extracts clinical insights from complex medical records

HIPAA Compliant

De-identified data that meets all privacy and security requirements

Unprecedented Data Granularity

Access data that is 10x more granular than syndicated sources, providing unprecedented depth and detail for your research and commercial needs.

Longitudinal Patient Journey Data

Complete patient timelines

Structured & Unstructured Records

Comprehensive clinical data

Treatment Patterns & Outcomes

Real-world evidence

Diagnostic & Lab Results

Detailed clinical markers

Comprehensive Data Coverage

Our platform aggregates multiple data sources to provide a complete Patient360 view.

Structured Data

Demographics: Age, gender, race, ethnicity, geographic location
Diagnoses: ICD-10 codes, disease stage, comorbidities
Medications: Treatment regimens, dosing, duration, adherence
Procedures: CPT codes, surgical interventions, therapeutic procedures
Lab Results: Blood tests, biomarkers, genetic testing
Vital Signs: Blood pressure, heart rate, weight, temperature
Healthcare Utilization: Hospitalizations, ER visits, office visits

Unstructured Data

Clinical Notes: Physician narratives, progress notes, consultation reports
Pathology Reports: Tissue analysis, tumor characteristics, biomarker status
Imaging Reports: Radiology findings, tumor measurements, disease progression
Discharge Summaries: Hospital course, treatment outcomes, follow-up plans
Patient-Reported Outcomes: Quality of life, symptoms, functional status
Genetic Reports: Genomic testing, mutation profiles, hereditary findings
Treatment Response: Clinical outcomes, adverse events, efficacy measures

Data Applications

Our Patient360 data powers critical research and clinical applications across the healthcare ecosystem.

Patient Identification

Identify eligible patients for clinical trials based on complex inclusion/exclusion criteria.

Real-World Evidence

Generate real-world evidence to support regulatory submissions and market access.

Disease Understanding

Gain deeper insights into disease progression, phenotypes, and patient journeys.

Success Stories

See how leading organizations leverage Clinakos data to drive breakthrough discoveries in rare disease and oncology.

Case Study: Ultra-Rare Disease Physician Identification

A global biopharma company needed to rapidly find the few physicians actively treating patients with an ultra-rare disease—focusing on those with patients still untreated or struggling with avoidable side effects. Traditional lists, claims pulls, and broad targeting were too slow, too noisy, and missed critical specialists.

Clinakos’ Medically Smart AI™ cut through the noise by analyzing real-world patient files and physician–patient discussions at scale, surfacing exactly which physicians were already managing the right patients—and where to find them.

Impact in weeks, not months:

Instead of a manual, hit-or-miss search, the client walked away with a precise, prioritized engagement list—accelerating outreach, tightening targeting, and ensuring the right physicians and patients were reached faster.

Case Study: Unlocking High-Value Subpopulations for a Rare Disease Therapy

A rare disease company taking over an existing therapy needed to understand who was truly benefiting and who was being left behind across a highly complex, misdiagnosis-heavy population. Clinakos’ Integrated Patient Data™ and Medically Smart AI™ drilled into the full patient story, from first symptoms and misdiagnoses to treatment switches and disease progression.

Results with Clinakos Data:

135+ documents per patient analyzed, spanning 66+ clinical and non-clinical document types.
85% of patients initially misdiagnosed before reaching the correct rare disease diagnosis.
100% of patients had discontinued at least one prior treatment, revealing widespread trial-and-error therapy.
One cohort with disease progression held to 38% once properly treated vs >90% progression in another cohort.

These cohort-level insights gave the client clear, patient-level evidence to redesign access, education, and support programs—focusing on the subpopulations with the greatest diagnostic burden and the highest potential to benefit from the therapy.

Ready to Access Our Data?

See how our Patient360 data can accelerate your R&D and commercialization.