The latest Delayed Diagnosis Study from the EveryLife Foundation reveals a staggering truth: delayed diagnosis of rare diseases can cost families and the healthcare system up to $517,000 per patient in avoidable expenses, with the average diagnostic journey stretching over six years and involving as many as 17 clinical encounters. This isn’t just a financial crisis—it’s a human one, with families enduring years of uncertainty, missed opportunities for early intervention, and preventable suffering.

At Clinakos Inc., we believe this is unacceptable. Our mission is to end the diagnostic odyssey for rare disease patients by harnessing Integrated Patient Data™ and Medically Smart AI™. By connecting real-time, patient-level data from thousands of sources—including EMRs, labs, and patient-reported outcomes—we empower clinicians and researchers to accelerate accurate diagnoses, reduce unnecessary costs, and deliver better outcomes for patients and families.

The data is clear: early, precise diagnosis changes lives and saves resources. Let’s transform rare disease care together.

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