💡 Rare diseases disproportionately affect children, with a staggering two-thirds of American rare disease patients being kids. This sobering statistic underscores the critical importance of early detection and intervention – a mission that drives us at Clinakos Inc.

Meet Anthony, whose story, shared by National Organization for Rare Disorders, puts a face to this urgent need. By age 4, this once vibrant boy was diagnosed with Batten Disease (Neuronal Ceroid Lipofuscinosis Type 7), a rare and terminal condition. Anthony’s path to diagnosis was riddled with obstacles – misdiagnoses, ineffective treatments, and a relentless progression of symptoms, including vision loss and seizure-like episodes.

His mother’s unwavering determination and a genetic test in July 2021 finally uncovered the truth. Anthony faces immense challenges today, yet his spirit shines through in every smile and laugh. 💜

At Clinakos Inc., we’re answering the call to action raised by stories like Anthony’s. Our innovative approach combines Integrated Patient Data™ and Medically Smart AI™ to revolutionize rare disease care by:

✅Enhancing patient insights
✅Speeding up accurate diagnoses
✅Improving treatment outcomes

Our goal? To ensure that no rare disease family fights alone and that children like Anthony receive the timely, precise care they urgently need.

Today, February 28, is Rare Disease Day – a global observance that highlights the challenges faced by millions worldwide.

👉 Be part of the change. Join Clinakos Inc. in transforming rare disease care and giving hope to millions of affected children and their families.