Rare Patient Voice and Clinakos Launch a Patient Level Data and Insights Solution across 563 Rare Disease and Oncology Indications

Clinakos, Rare patient voice, Patient journey, rwe, rwd, rare diseases, Patient insights, clinical development, HEOR, medical affairs, commercial

PALO ALTO, CA and TOWSON, MD, April 20, 2021 Rare Patient Voice (RPV), the leader in patient-focused recruiting, and Clinakos, the market leader in linked patient level data and insights, are pleased to announce an industry-first collaboration designed to combine the patient voice with actual patient data. This innovative partnership brings together Rare Patient Voice’s […]

Patient Journeys and Insights for Oncology and Rare Diseases

Clinakos, Patient journey, rwe, rwd, rare diseases, Patient insights, clinical development, HEOR, medical affairs, commercial

The Challenge Creating robust patient journeys for rare disease patients is challenging. Rare disease patients are very difficult to find. Their data is often lacking in syndicated or aggregated data sets due to the rarity of the conditions. Even when the patients can be found, it is difficult to ensure that their relevant medical data […]

Oncologists Respond to Care Challenges Presented by COVID-19

Clinakos, COVID-19, commercial, Clinical Development, Clinical Trials, ASCO

Oncologists Respond to Care Challenges Presented by COVID-19 ASCO survey finds 60% of cancer clinical research programs halted screening and/or enrollment of clinical trials due to Covid-19 difficulties. Further, ASCO also finds Oncology practices reporting grave impact on their patients and their families. This is expected to have a wide ranging impact on how oncology […]

Patient Persistence Solutions

https://player.vimeo.com/video/387512628?title=0&byline=0&portrait=0&rel=0Digital markers can help create personalized interactions with patients and HCPs in order to improve patient persistence on treatment. In today’s AMA Moving Medicine Podcast, Dr. Marie Brown says “We know that, if the patients don’t take their medicine, they’re never going to get their…chronic conditions under control.” Check out the video below to see […]

Quote from the JP Morgan Conference 2020

Clinakos, JP Morgan, Seema Verma, Patient medical record, connected data, Patient data

“Patient medical records have gone from filing cabinets to electronic silos. There is tremendous value if these records can be connected and patients have access to them.” -Seema Verma, Administrator CMS, today at JPM 2020. We agree!