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Clinakos, Rare Disease, Integrated Patient Data, Medically Smart AI

From Margins to Mainstream: Including Underrepresented Patients in RWE

From Margins to Mainstream: Including Underrepresented Patients in RWE August 28, 2025 📉 Underserved. Underdiagnosed. Underrepresented. That’s the reality for millions of patients missing from real-world evidence.   They don’t show up in the claims. They’re undercoded in EHRs. They’re overlooked in traditional cohort designs.   And when they’re invisible to your data, they’re invisible […]

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Clinakos, Rare Disease, Integrated Patient Data, Medically Smart AI

Auto-inflammatory awareness month

Auto-inflammatory awareness month August 26, 2025 🧡August is Autoinflammatory Disease Awareness Month!    Did you know that autoinflammatory diseases are rare, often misunderstood conditions where the immune system causes inflammation by attacking the body itself? These diseases can be difficult to diagnose and manage, impacting patients and families in profound ways.   🔍 A major

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Clinakos, Rare Disease, Integrated Patient Data, Medically Smart AI

2024 Global “AI in Oncology” market report

2024 Global “AI in Oncology” market report August 21, 2025 🚀 Clinakos Inc. is proud to be recognized as a key player in shaping the future of AI-driven oncology alongside market leaders including Nvidia, ConcertAI, Oracle, PathAI, CureMatrix, @Tempus, GE Healthcare, Siemens Healthineers, Medrtonic, Roche, Insilico Medicone, and others.    According to the latest AI

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Clinakos, rare disease, integrated patient data, medically smart AI, Patient Data, Real-World Data, RWD

Unlocking the Power of External Control Arms with Real-World Data

Unlocking the Power of External Control Arms with Real-World Data August 7, 2025 A recent editorial in Frontiers in Drug Safety and Regulation highlights a major shift in clinical research: over 50% of single-arm HTA submissions between 2011 and 2019 included some form of external control data—a clear sign of ECAs’ growing importance for regulatory

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Clinakos, rare disease, integrated patient data, medically smart AI, Patient Data

Myth: “All patient data sources provide the same level of insight for research.”

Myth: “All patient data sources provide the same level of insight for research.” August 6, 2025 There’s a common myth floating around, and we are about to break that 🔨“Myth: All Patient Data Sources Offer Equal Insights” 🚫🔬   That’s simply NOT true.   In life sciences—especially in Rare Disease & Oncology—data quality isn’t just

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Clinakos, rare disease, integrated patient data, medically smart AI, Natural history

Mayo Clinic Natural History Study

Mayo Clinic Natural History Study July 29, 2025 The Mayo Clinic has launched a landmark natural history study focused on autosomal dominant leukodystrophy (ADLD), an ultra-rare hereditary neurodegenerative disorder. This initiative will collect deep, longitudinal data—medical records, imaging, genetics, and more—to better understand disease progression and accelerate new therapies for patients who urgently need them. 

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