About Clinakos

We’re on a mission to accelerate breakthroughs in rare disease and oncology by making high-quality patient data and AI Agents accessible to innovators worldwide.

Our Mission

To empower researchers, pharmaceutical companies, and healthcare innovators with unprecedented access to curated patient data for rare diseases and oncology.

We believe that the biggest barrier to rare disease research isn’t a lack of scientific knowledge—it’s a lack of accessible, high-quality patient data. Clinakos solves this fundamental problem by aggregating and curating patient information that would otherwise remain siloed and inaccessible.

Our Vision

A world where every patient with a rare disease or cancer benefits from accelerated research and personalized treatments enabled by comprehensive data insights.

By combining cutting-edge AI technology with deep medical expertise, we’re building the data infrastructure that will power the next generation of breakthrough therapies for the patients who need them most.

Our Expertise

Clinakos was founded with a vision that patient-level-data had the potential to change how drugs are developed and commercialized. We started using AI solutions before they were called AI solutions. Our platform and products are built and supported by a team of physicians, pharmacists, data scientists, medical informaticists, and rare disease experts who understand the critical gap in accessible patient data.

Our multidisciplinary team combines expertise in:

What Makes Clinakos Different

We’ve built proprietary technology that solves the hardest problems in rare disease data.

Medically Smart AI™

Unlike generic AI models, our proprietary algorithms are purpose-built for medical data. They understand clinical context, medical terminology, and the nuances of rare disease documentation.
This allows us to extract meaningful insights from unstructured clinical notes, pathology reports, and physician narratives that other systems miss.

Comprehensive Data Coverage

We’ve painstakingly curated patient panels for 1,500+ rare diseases—many of which have never had accessible research data before.

Our platform includes both structured data (diagnoses, labs, medications) and unstructured data (clinical notes, imaging reports) for a true 360-degree patient view.

Quality Over Quantity

Every data point in our platform undergoes rigorous curation and validation to ensure research-grade accuracy.
We don’t just aggregate data—we clean it, normalize it, and enrich it with additional context to make it immediately useful for research.

Privacy First

All patient data is fully de-identified and HIPAA compliant. We’ve built privacy and security into every layer of our platform.
Researchers get the insights they need while patients’ privacy remains completely protected.

Our Values

The principles that guide our work every day.

Patient Impact

Every decision we make is guided by its potential to improve outcomes for patients with rare diseases and cancer.

Scientific Rigor

We maintain the highest standards of data quality, accuracy, and medical validity in everything we do.

Data Accessibility

We believe that high-quality patient data should be accessible to all researchers working to improve patient care.