Spinal Muscular Atrophy (SMA) is a rare genetic disorder that affects the motor neurons in the spinal cord, leading to muscle weakness and loss of movement. It impacts thousands of families worldwide, often striking in infancy or early childhood, though it can also appear in adulthood.

Meet Vaia—diagnosed with SMA and severe spinal complications as a toddler. Thanks to early intervention and innovative treatment, she’s not just defying the odds—she’s living life to the fullest. 🎉 Read Vaia’s full story here

Here are some key facts everyone should know:

🔬 SMA is the top genetic cause of infant mortality, but early detection and new therapies are bringing hope.

👶 Around 1 in 6,000 to 10,000 babies are born with SMA worldwide, but most carriers are unaware they have the gene.

🧠 SMA doesn’t affect intelligence—people with SMA are just as thoughtful and capable as anyone else.

🧬 Genetic testing and early intervention are making a real difference in outcomes for those affected.

This month, let’s amplify voices, support families, and spread knowledge. Every fact shared brings us a step closer to greater understanding and better care. Every story matters. 🌟