Rare diseases are costing us more than we think.

📊 30 million Americans live with a rare disease.
⏳ It takes an average of 6 years and 17 medical encounters for diagnosis.
💸 And the cost? Over $1 trillion annually in the U.S. alone—just from 379 out of 10,000+ rare diseases.

Here’s what’s even harder to process:
🚫 95% of rare diseases still have no FDA-approved therapy.
🚫 And most patients remain invisible in traditional datasets—undiagnosed, misclassified, and underserved.

At Clinakos Inc., we believe that Rare should not mean invisible. That is why-
🔍 We uncover the hidden journeys—before they become clinical and economic crises
📡 Our Integrated Patient Data™ connects siloed touchpoints to help understand the natural history of disease and identify patients’ journeys
🧠 Our Medically Smart AI™ identifies diagnostic delays, identifies patients in need, and uncovers health outcomes
📈 And we help life sciences teams act sooner, with smarter access strategies and evidence development

Rare disease shouldn’t mean delayed, dismissed, or disastrously expensive.
It’s time to rethink what real-world evidence should capture—and who it should serve.

Let’s make the invisible visible.
Let’s find them faster. Together.

Read the full article here: https://lnkd.in/gmxTEJm4

📅 Book a time with our team [https://lnkd.in/gp3gUmXc]
👉Follow us at Clinakos Inc.