Rare diseases are costing us more than we think.
30 million Americans live with a rare disease.
⏳ It takes an average of 6 years and 17 medical encounters for diagnosis.
And the cost? Over $1 trillion annually in the U.S. alone—just from 379 out of 10,000+ rare diseases.
Here’s what’s even harder to process:
95% of rare diseases still have no FDA-approved therapy.
And most patients remain invisible in traditional datasets—undiagnosed, misclassified, and underserved.
At Clinakos Inc., we believe that Rare should not mean invisible. That is why-
We uncover the hidden journeys—before they become clinical and economic crises
Our Integrated Patient Data™ connects siloed touchpoints to help understand the natural history of disease and identify patients’ journeys
Our Medically Smart AI™ identifies diagnostic delays, identifies patients in need, and uncovers health outcomes
And we help life sciences teams act sooner, with smarter access strategies and evidence development
Rare disease shouldn’t mean delayed, dismissed, or disastrously expensive.
It’s time to rethink what real-world evidence should capture—and who it should serve.
Let’s make the invisible visible.
Let’s find them faster. Together.
Read the full article here: https://lnkd.in/gmxTEJm4
Book a time with our team [https://lnkd.in/gp3gUmXc]
Follow us at Clinakos Inc.
